{"id":4061,"date":"2022-09-06T22:42:00","date_gmt":"2022-09-06T22:42:00","guid":{"rendered":"https:\/\/2024.thenexus.today\/index.php\/2022\/09\/06\/adppa-with-a-queer-lens\/"},"modified":"2022-09-06T22:42:00","modified_gmt":"2022-09-06T22:42:00","slug":"adppa-with-a-queer-lens","status":"publish","type":"post","link":"https:\/\/2024.thenexus.today\/index.php\/2022\/09\/06\/adppa-with-a-queer-lens\/","title":{"rendered":"Stress-testing privacy legislation with a queer lens"},"content":{"rendered":"<p><em>Last updated: November 18. \u00a0See <a href=\"#updates\">Updates<\/a> at the end for a change log.<\/em><\/p>\n<blockquote><p>The best way for any federal or state legislature to assure all consumers\u2019 privacy is protected online is to stress-test their laws against the harsh and worsening realities of queer experiences. If a law can protect queer interests, it will ensure that all consumers are maximally protected. <\/p>\n<p>\u2013 <a href=\"https:\/\/publicknowledge.org\/hiding-out-a-case-for-queer-experiences-informing-data-privacy-laws\">Hiding OUT: A Case for Queer Experiences Informing Data Privacy Laws<\/a>, Antoine Prince Albert III on Public Knowledge<\/p><\/blockquote>\n<p>Civil rights groups and privacy advocates are very justifiably excited about the inclusion of civil rights protections in the proposed American Data Privacy and Protection Act (ADPPA). \u00a0Getting strong bipartisan support for the principle that privacy rights are civil rights is hugely important \u2013 and the fact that privacy legislation with a civil rights focus has advanced from committee (on a 53-2 vote!) is a significant milestone.<\/p>\n<p>But as Professor Daniel Solove says in \u00a0<a href=\"https:\/\/teachprivacy.com\/further-thoughts-on-adppa-the-federal-comprehensive-privacy-bill\/\">Further Thoughts on ADPPA, the Federal Comprehensive Privacy Bill<\/a>, \u00a0&#8220;many parts of privacy laws have pretty-sounding rhetoric but ultimately are not any deeper.&#8221; \u00a0How deep are the protections in the current version of the ADPPA?<\/p>\n<p>So I decided to take Antoine Prince Albert III&#8217;s excellent suggestion and stress-test ADPPA through a queer lens. \u00a0It turned out to be a very interesting exercise.<\/p>\n<h2 id=\"ten-stress-tests\">Ten stress tests<\/h2>\n<p>Here are ten stress tests of how well ADPPA protects the interests of LGBTAIQ2S+ people.* \u00a0The first seven come from <a href=\"https:\/\/publicknowledge.org\/hiding-out-a-case-for-queer-experiences-informing-data-privacy-laws\">Hiding OUT<\/a>&#8216;s &#8220;Queering Ya Privacy&#8221; section, with some minor restructuring and wording changes; the last three focus on some specific hot spots in the ADPPA debate so far. <\/p>\n<p>This isn&#8217;t meant to be definitive; there are a lot of other possible stress tests, and I&#8217;d love to hear what others come up with. \u00a0 But I haven&#8217;t seen much other discussion of this, and it&#8217;s an important topic, so hopefully this will spark additional discussion.<\/p>\n<p>Each test is phrased as questions. I\u2019ve included a emoji to reflect how I think the current version of ADPPA responds to the questions.<\/p>\n<p><strong>\u2705 <\/strong><em><strong>yes<\/strong>!<strong> <\/strong>ADPPA passes the test<\/em><strong><br \/>\u2753 <\/strong><em>I\u2019m not sure or it&#8217;s complex<\/em><strong><br \/>\u274c <\/strong><em><strong>no.<\/strong> \u00a0ADPPA does not currently pass the test<\/em> \u00a0<\/p>\n<ol>\n<li><strong>\u274c <\/strong>Does ADPPA protect private media, personal correspondence, informational data, and metadata by default?<\/li>\n<li>\u274c Does ADPPA protect sensitive data like a romantic video, an emotional voice note, or an online private message threads?<\/li>\n<li>\u274c Does ADPPA protect information about people\u2019s communications patterns?<\/li>\n<li>\u2705 Does ADPPA contain heightened protection of individuals\u2019 account or device log-in credentials, activities over time and across third-party websites or services?<\/li>\n<li>\u2753 Does ADPPA contain heightened protection information about television, cable or streaming service subscriptions, preferences, and usage?<\/li>\n<li>\u2753 Does ADPPA tightly secure health and genetic information?<\/li>\n<li>\u2753 Does ADPPA include intentionally inclusive civil rights protections?<\/li>\n<li>\u274c Does ADPPA tightly secure location data that could put LGBTAIQ2S+ people at risk?<\/li>\n<li>\u274c Does ADPPA protect pregnant LGBTAIQ2S+ people in states that have criminalized abortion?<\/li>\n<li>\u274c Does ADPPA allow pro-LGBTAIQ2S+ cities and states to protect residents by passing stronger protections?<\/li>\n<\/ol>\n<p>If your first thought is &#8220;yikes, this is not good, we should do something about it,&#8221; feel free to skip ahead to <em><strong>Time for an Intervention<\/strong><\/em>.<\/p>\n<p>Otherwise, read on for the details. \u00a0<\/p>\n<h3 id=\"%E2%9D%8C-does-adppa-protect-private-media-personal-correspondence-informational-data-and-metadata-by-default\">\u274c <strong>Does ADPPA protect private media, personal correspondence, informational data, and metadata by default?<\/strong><\/h3>\n<p>This is an easy and unambiguous one: no. \u00a0ADPPA only protects sensitive data by default. Data that reveals sexual orientation, gender identity or experession, or sex is not considered sensitive \u2013 so isn\u2019t protected by default. \u00a0As Albert says, \u201cSafeguarding data that facially connects people to nontraditional sexual orientations or activities is paramount.\u201d<\/p>\n<h3 id=\"%E2%9D%8C-does-adppa-protect-sensitive-data-like-a-romantic-video-an-emotional-voice-note-or-an-online-private-message-threads\"><strong>\u274c Does ADPPA protect sensitive data like a romantic video, an emotional voice note, or an online private message threads?<\/strong><\/h3>\n<p>The previous version of ADPPA would have been a yes on this. \u00a0Videos, voice notes, private message threads are all considered sensitive data in ADPPA. \u00a0So are Albert\u2019s other examples including background data and metadata like calendar events, address book contacts and contact notes, and phone logs.<\/p>\n<p>Unfortunately, the latest version added a major exception: much of this information is <em>not <\/em>considered sensitive if it\u2019s on employer-issued machines. \u00a0Work-related discussions may include very sensitive data; and many queer people blur the boundaries between work machines and personal business.<\/p>\n<h3 id=\"%E2%9D%8C-does-adppa-protect-information-about-people%E2%80%99s-communications-patterns\"><strong>\u274c Does ADPPA protect information about people\u2019s communications patterns?<\/strong><\/h3>\n<p>No. \u00a0For one thing, communications patterns employer-issued machines are not protected. \u00a0And as EFF noted in their <a href=\"https:\/\/www.eff.org\/files\/2022\/06\/14\/2022.06.13_eff_letter_to_house_enc_re._hearing_on_protecting_americas_consumers_.pdf\">June comments<\/a> on the discussion draft, ADPPA\u2019s definition of sensitive data should be expanded to include familial and social relationships.<\/p>\n<h3 id=\"%E2%9C%85-does-adppa-contain-heightened-protection-of-individuals%E2%80%99-account-or-device-log-in-credentials-activities-over-time-and-across-third-party-websites-or-services\"><strong>\u2705 Does ADPPA contain heightened protection of individuals\u2019 account or device log-in credentials, activities over time and across third-party websites or services?<\/strong><\/h3>\n<p>Yes, ADPPA treats these all as sensitive data.<\/p>\n<h3 id=\"%E2%9D%93does-adppa-contain-heightened-protection-information-about-television-cable-or-streaming-service-subscriptions-preferences-and-usage\">\u2753<strong>Does ADPPA contain heightened protection information about television, cable or streaming service subscriptions, preferences, and usage?<\/strong><\/h3>\n<p>I think so but the language just changed in the last version and I haven \u2018t seen any analyses of it yet so am not sure.<\/p>\n<h3 id=\"%E2%9D%93does-adppa-tightly-secure-health-and-genetic-information\">\u2753<strong>Does ADPPA tightly secure health and genetic information?<\/strong><\/h3>\n<p>ADPPA considers both health and genetic information as sensitive data but there are some significant exceptions so the answer here is not straightforward.<\/p>\n<p>One big potential loophole is that &#8220;de-identified&#8221; data is completely exempted from the ADPPA. \u00a0I put air quotes around \u201cde-identified\u201d because it is almost always easy to re-identify people. \u00a0Indeed, as<a href=\"https:\/\/www.nejm.org\/doi\/full\/10.1056\/NEJMp2102616?query=WB\"> HIPAA and the Leak of \u201cDeidentified\u201d EHR Data<\/a> in the New England Medical Journal discusses, HIPAA&#8217;s exception for &#8220;de-identified&#8221; health data has allowed &#8220;massive troves of digital health data to traverse the medical\u2013industrial complex unmonitored and unregulated.&#8221; \u00a0There\u2019s been a lot of discussion of \u201cde-identified\u201d location data under ADPPA (and we\u2019ll mention it too in the next section), but as far as I know there hasn\u2019t been any discussion of \u201cde-identified\u201d health data as a potential loophole.<\/p>\n<p>Also, ADPPA\u2019s data minimization rules have exceptions allowing data to be used without consent for internal research and public interest research. \u00a0A bipartisan amendment in the latest version, described in terms of making it easier to do clinical research, changed the public interest research language. I haven\u2019t yet seen a discussion of whether it opened up some loopholes but it seems worth looking at.<\/p>\n<h3 id=\"%E2%9D%93-does-adppa-include-intentionally-inclusive-civil-rights-protections\"><strong>\u2753 Does ADPPA include intentionally inclusive<em> <\/em>civil rights protections?<\/strong><\/h3>\n<p>At first it seems like this is a clear &#8220;no&#8221;. The list of protected classes in ADPPA&#8217;s anti-discrimination language (\u00a7207(c)) does not mention sexual orientation, gender identity, or gender expression.<\/p>\n<p>But it&#8217;s more complex than that. \u00a0The Supreme Court&#8217;s 2020 Bostock ruling found that &#8220;on the basis of sex&#8221; includes discrimination on the basis of sexual orientation or gender identity, meaning that they&#8217;re implied by the current language in ADPPA as well. \u00a0Then again, just last month, a judge in Tennessee issued an injuction blocking the Department of Education from Title IX protections to transgender and gay employees\/students. \u00a0So the law is potentially unsettled. \u00a0<\/p>\n<p>On the one hand, as Albert says, queer people cannot rely on \u201cinterpretive generosity.\u201d \u00a0On the other hand, I don&#8217;t know the political landscape around this issue; it could be that there&#8217;s some reason that it&#8217;s actually better to rely on the current language. \u00a0So I&#8217;m going to leave this as a \u2753 for now in hopes until it&#8217;s clear what LGBTAIQ2S+ organizations and activists think is the right answer.<\/p>\n<h3 id=\"%E2%9D%8C-does-adppa-tightly-secure-location-data-that-could-put-lgbtaiq2s-people-at-risk\"><strong>\u274c Does ADPPA tightly secure location data that could put LGBTAIQ2S+ people at risk?<\/strong><\/h3>\n<p>&#8220;Precise geolocation data&#8221; (\u00a72(24)) is considered sensitive data under ADPPA so it seems like the answer to this should be yes. \u00a0But there\u2019s a big caveat here: a lot of data that you and I might think of as precise location data <em>isn&#8217;t <\/em>considered &#8220;precise geolocation data&#8221; under ADPPA.<\/p>\n<p>For example, Californians for Consumer Privacy <a href=\"https:\/\/www.caprivacy.org\/californians-for-consumer-privacy-announce-opposition-to-adppa\/\">notes that<\/a> location data inferred from a surveillance camera or a photo taken in a gay bar aren\u2019t considered sensitive data \u2013 meaning it can be shared without consent.<\/p>\n<p>And remember just last year when <a href=\"https:\/\/www.vox.com\/recode\/22587248\/grindr-app-location-data-outed-priest-jeffrey-burrill-pillar-data-harvesting\">\u201cde-identified\u201d data from gay dating app data Grindr was apparently sold off and linked to a Catholic priest<\/a>, who then resigned from his job? \u00a0ADPPA completely exempts \u201cde-identified\u201d data. \u00a0Sen. Ron Wyden, who\u2019s usually right about stuff like this, has flagged this as a major loophole.<\/p>\n<h3 id=\"%E2%9D%8C-does-adppa-protect-pregnant-lgbtaiq2s-people-in-states-that-have-criminalized-abortion\"><strong>\u274c Does ADPPA protect pregnant LGBTAIQ2S+ people in states that have criminalized abortion?<\/strong><\/h3>\n<p>Probably not.<\/p>\n<ul>\n<li>Rep. Anna Eshoo has said ADPPA has a loophole that leaves pregnant people at risk of having their data shared with&#8221;sinister prosecutors&#8221; in states that have criminalized abortion<\/li>\n<li>Sen. Wyden says the de-identified data loophole lets companies sell location data to the government about visits to reproductive health facilities<\/li>\n<li>Senate Commerce Committee staffers warn that the bill &#8220;makes it harder for people to seek redress when their sensitive health data has been used against them\u201d and would force people to \u201cjump through arbitrary, drawn-out hoops\u201d to sue over privacy violations.<\/li>\n<li>Kim Clark of Legal Voice says \u201cThis bill, at least from the perspective of pregnant people, it really doesn\u2019t do much\u201d<\/li>\n<\/ul>\n<h3 id=\"%E2%9D%8C-does-adppa-allow-pro-lgbtaiq2s-cities-and-states-to-protect-residents-by-passing-stronger-protections\"><strong>\u274c Does ADPPA allow pro-LGBTAIQ2S+ cities and states to protect residents by passing stronger protections?<\/strong><\/h3>\n<p>No. ADPPA preempts most existing and future state and local privacy laws. \u00a0Daniel Solove&#8217;s<a href=\"https:\/\/teachprivacy.com\/a-faustian-bargain-is-preemption-too-high-a-price-for-a-federal-privacy-law\"> A Faustian Bargain: Is Preemption Too High a Price for a Federal Privacy Law?<\/a> looks at the tradeoffs around preemption in general. \u00a0From an LGBTAIQ2S+ perspective, this means that if a city like Seattle or a state like Washington wants to better protect its LGBTAIQ2S+ residents by addressing some these problems &#8230; we can&#8217;t.<\/p>\n<h2 id=\"important-this-generalizes-to-other-lenses\">Important: This generalizes to other lenses<\/h2>\n<p>There is nothing uniquely powerful about the LGBTAIQ2S+ lens. \u00a0Other targeted and marginalized communities also have harsh and worsening realities. \u00a0Stress-testing legislation from the perspectives pregnant people and potentially-pregnant people, immingrants, disabled people, Native American and Indigenous people, people without their own devices and\/or access to a network, seniors &#8230; all of those lenses can yield insights \u2013 and highlight issues that aren&#8217;t getting attention in the broader conversation.<\/p>\n<p>For example, over two dozen disability rights groups have written to Speaker Pelosi which includes a good description of the harsh realities of how disabled people are at particular risk from the misuse of data, including unscrupulous, exploitative, risky, or even dangerous uses of data. \u00a0It also describes three important stress tests for ADPPA<\/p>\n<blockquote><p>defining health and disability data as sensitive and thus given extra protection, defining disability as a protected class, and requiring that covered entities make their policies and consent mechanisms accessible to people with disabilities<\/p><\/blockquote>\n<p>They also ask Pelosi (and the legislators from both parties they CC&#8217;ed) to retain and <em>improve<\/em> the protections. \u00a0Stress tests from a disability perspective can identify specific improvements. It&#8217;s good that ADPPA defines health and disability data as sensitive; however, employee data is exempt, so what about disability-related HR and benefits information? \u00a0Is purchasing behavior involving books about long Covid sensitive? \u00a0 Do companies need consent to use &#8220;non-sensitive&#8221; data to target ads for those books? \u00a0And so on &#8230; \u00a0<\/p>\n<p>There are plenty of other disability stress tests to consider it as well. \u00a0The groups who have written the letter, as well as other disability advocates, have the clearest picture of what they want to see in legislation, so are likely to come up with the most relevant tests. \u00a0And the same is true for other stress tests. \u00a0Who best knows the privacy and surveillance threats to immigrants? \u00a0Immigrants!<\/p>\n<hr>\n<p>* I&#8217;m using \u00a0LGBTAIQ2S+ as a shorthand for lesbian, gay, gender non-conforming, genderqueer, bi, trans, asexual, agender, intersex, queer, questioning, <a href=\"https:\/\/oacas.libguides.com\/sogie\/two-spirit\">two-sprit<\/a>, and others who are not straight, cis, or heteronormative. \u00a0<a href=\"https:\/\/www.juliaserano.com\/terminology.html\">Julia Serrano&#8217;s trans, gender, sexuality, and activism glossary<\/a> has definitions for most of terms, although resources like <a href=\"https:\/\/oacas.libguides.com\/sogie\/two-spirit\">OACAS Library Guides&#8217; Two-spirit identities page<\/a> to into a lot more detail. Serrano also discusses the tensions between ever-growing and always incomplete acronyms and more abstract terms like &#8220;gender and sexual minorities&#8221;. For this particular essay, the specific perspectives matter in the section highlighting why sex, sexual orientation, and gender identity all need to be treated as sensitive data, so I decided to go with the acronym despite its problems.<\/p>\n<p>Ontario Human Rights Commission&#8217;s page on <a href=\"https:\/\/www3.ohrc.on.ca\/en\/en\/policy-preventing-discrimination-because-gender-identity-and-gender-expression\/3-gender-identity-and-gender-expression\">Gender identity and gender expression<\/a> is a good short reference on the distinctions between gender identity, gender expression, sexual orientation, and sex.<\/p>\n<\/p>\n<h2 id=\"updates\">Updates<\/h2>\n<\/p>\n<p><strong>September 8<\/strong>: <\/p>\n<ul>\n<li>Added new &#8220;Important: This generalize to other lenses&#8221; section. <\/li>\n<li>Changed the title; it was originally &#8220;Stress-testing ADPPA with a queer lens&#8221; but other than hard-core privacy people nobody knows what ADPPA is. <\/li>\n<\/ul>\n<p><strong>November 18<\/strong>: <\/p>\n<ul>\n<li>Removed &#8220;time for an intervention&#8221; section \u2013 as we&#8217;re heading into the lame duck session, there isn&#8217;t really time any more!<\/li>\n<\/ul>\n<\/p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Last updated: November 18. \u00a0See Updates at the end for a change log. The best way for any federal or state legislature to assure all consumers\u2019 privacy is protected online is to stress-test their laws against the harsh and worsening realities of queer experiences. If a law can protect queer interests, it will ensure that [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[458,459],"class_list":["post-4061","post","type-post","status-publish","format-standard","hentry","category-uncategorized","tag-adppa","tag-federal-privacy-legislation"],"_links":{"self":[{"href":"https:\/\/2024.thenexus.today\/index.php\/wp-json\/wp\/v2\/posts\/4061","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/2024.thenexus.today\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/2024.thenexus.today\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/2024.thenexus.today\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/2024.thenexus.today\/index.php\/wp-json\/wp\/v2\/comments?post=4061"}],"version-history":[{"count":0,"href":"https:\/\/2024.thenexus.today\/index.php\/wp-json\/wp\/v2\/posts\/4061\/revisions"}],"wp:attachment":[{"href":"https:\/\/2024.thenexus.today\/index.php\/wp-json\/wp\/v2\/media?parent=4061"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/2024.thenexus.today\/index.php\/wp-json\/wp\/v2\/categories?post=4061"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/2024.thenexus.today\/index.php\/wp-json\/wp\/v2\/tags?post=4061"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}